Have Yourself a Merry Little Christmas

Choosing December’s song

I was searching through some Christmas Music to decide which song I wanted to cover for December when I came across the original version of this song. It’s from the movie “Meet me in St. Louis” sung by Judy Garland. I really enjoy the first lyrics. They have a bit more emotional tension than I feel the later versions have. For instance:

Original – “Someday soon we all will be together. If the fates allow. Until then we’ll have to muddle through somehow.”

Later arrangements – “Through the years we all will be together. If the fates allow. Hang a shining star upon the highest bough.”

The message

The lyric differences are subtle, but to me the first lyrics bring the message that sometimes and for some, the holidays can be a difficult time. They are full of joy and love of course, but with a slight feeling of sadness, especially when missing loved ones. We have always really enjoyed our holidays, but we often have this underlying sorrow for the pain and suffering that our sons have to go through, especially our older son Eli. And we can’t help but wonder sometimes if it will be his last Christmas with us in this life.

Eli’s Experience

There are periods of time, becoming more and more frequent that Eli experiences pain and even more often, discomfort, in his progression with GM1 Gangliosidosis.

I’ve come to believe now that Eli and Evan are having the life experience they are meant to have. This is their journey, their path. And it comes with suffering at times. As a mother, you just want to help your child to be comfortable and happy, but that is not always possible. I try to help him, but despite my best efforts, he struggles.

Like a Tree

Unfortunately, suffering and sorrow is going to happen for all of us. I know Eli’s spirit is strong and becoming stronger through all of this. Just like a tree has deeper roots and grows taller in more difficult weather conditions, our character strengthens and our roots deepen as we face the storms of life.

So….have yourself a merry little Christmas…..no matter what you are going through!

Love, Marilee

Here is the original version of the song:


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